It's been a minute...

So, I haven't written in a while. It's been crazy around here. Things have not slowed down with Isaiah at all and life doesn't seem to slow down either!

OK, so two Wednesdays ago I received a call at 9:30 in the morning to be at the hospital at 1pm that afternoon to get Isaiah's chait tube put in. The thing was that I also had an appointment set up to find out the damage I had done to my ankle just before leaving the hospital earlier this month. So, I was able to rush over there and find out that I had bruised my bones and that was why it's been hurting so badly. Fortunately, I didn't fracture anything, though!!! Then, from there I had to rush to the hospital for Isaiah and since I had the other appointment, I didn't have time to drop Isabella and Jeremiah off with anyone and Isaiah wasn't allowed to eat, so I had to sneak a couple of little snacks to Isabella and Jeremiah, so they didn't start screaming. Those of you who have children know that those little snacks didn't save me from anything!!!! Isabella and Jeremiah argued over everything! They were so crabby and what's funny is the fact that the one person that hadn't eaten anything was the only one that was quiet!!!! Isaiah didn't complain about anything! Well, with the other two complaining, every minute that passed felt like a hour! Finally, Isaiah was taken and I was able to take the other two to the cafeteria for some horrible pizza and cookies. I will tell you, though, it was so nice to sit there with the two of them and eat lunch. It's so awesome how they can make me smile and laugh even when I just want to cry. Their smiles and laughs really must be God's way of helping me forget how frustrating everything is.

Anyway, everything went fine in his surgery, but that night the tube kept trying to come out!!! I had to go to his doctor's office the next day and found out the doctor that did the procedure had put the WRONG tube in!!!! So, last Tuesday night I received another call to be at the hospital Wednesday morning to replace the tube. What was great was everything went well, but then AGAIN last night the tube started coming out AGAIN!!!!!!!! I will tell you that I have decided that chait tubes SUCK!!!! So, I've put a call into the doc and am now waiting to hear what he says this time.

Also, the mitrofinoff is still leaking like nobody's business and Isaiah has ANOTHER procedure set up for next Tuesday. The doc is going to put a sugar compound in to see if it will tighten the tube, so it will stop leaking, but he did explain that it's only a temporary fix. So, basically we are just trying to push off the huge, inevitable surgery as long as we can. You see, Isaiah apparently has to get a bladder augmentation (as well as redoing the mitrofinoff and MACE) and after studying up on it some, I found that doctors usually try to avoid doing it on small children, b/c basically what they are doing is cutting a hole in the bladder and putting a "patch" on it to enlarge it. Since the child is going to grow it raises the risk of the patch tearing away and causing really bad infections that can also be fatal. So, yeah, I'm kind of o.k. with the temporary fix!

A lot of people have said that they are amazed at how I can stay positive in all of this. Please understand that there have been a TON of tears shed, but the thing is that when you walk with Jesus Christ, He gives you peace to know that He's got the big picture taken care of. All I have to do is take Isaiah to the doctor visits and surgeries. The doctor's may be there, but God is the One in control. He's taking very good care of Isaiah and loves him more than I ever could. So, yeah, I'm still human and yeah, it DEFINITELY hurts to watch and go through, but I can have joy, b/c I have peace in Christ!