OK, so we are home and all and that's all gravy. Here's the thing, though: Isaiah is now peeing through his belly (his mitrofinoff - the tube that was created for us to catheterize his bladder) so much so that we have to wrap a diaper around him now!
I was thinking, when we had gotten home, that when we went out people would see the staples in his head, which isn't embarrassing or anything, but I'm sure it's a bit disconcerting when you don't know what's going on. But, it IS a little embarrassing that his shirt keeps coming up and showing our ghetto rigged diaper wrapped around his belly and actually being able to see that it's filling up!!!
UGH!!!! he has a surgery coming up in the next week or so to fix the MACE, but every time I try to show his doctor that he's leaking through that thing, IT STOPS LEAKING!!!!! It's so infuriating! You know how your car starts driving weird or making a weird sound or your computer keeps acting up? Doesn't it ALWAYS happen that whatever it is stops happening AS SOON as the specialist looks at it?!?!?! Then, when they leave, what happens? IT STARTS UP AGAIN!!!!! It's like, it wants you to look like you have LOST YOUR MIND!!!!
So! I texted him a picture of Isaiah's clothes, bed and belly diaper!!! HA! ARGUE WITH THAT!!!! Oops! 10.....9....8.....7..6..5.4,3,2,1....Okay, calm again.
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Yeah, feeling crazy--I know the feeling. Finally went to the ER for hemorrhaging and that's when it stopped. lol
ReplyDeletePraying for you guys and for some relief for Isaiah and peace for you. Let us (Pughs) know if there is something we could do to bless you. Love you